Hello. Most of you will know and most of you wouldn’t. I’m 21 years old a single mum to a beautiful little girl Isla-mai. She’s now 1 years old and become quite a character 😜. She’s the most beautiful little star ⭐️ and I wouldn’t change her for the absolute world. She’s the reason I made a blog account she’s the reason I fight and keep going. It’s been a really tough year due to Covid 19 anyway but even tougher behind closed doors for me and my bubbah. Isla was born at 38+3. She was delivered by forceps I’ll post a beautiful pic below ⬇️
This is my beautiful girl only a few mins old. Anyway, she was born with something called hypotonia which is known as “floppy syndrome” and had a heart defect. She was rushed into NICU for approx 7 days. They ended up doing scans and tests which came back she had chromosome abnormalities. Her chromosome 8 had a duplication and chromosome 2 deletion. I thought my nightmare was over. IT WASN’T. I then was told her brain didn’t develop properly and she actually had a cyst on her spine. It was a LOT to take in and handle. Today my daughter hasn’t met any milestones as of YET but she WILL. She’s making progress. She’s going to do it with my help. My little girl is in and out of hospital and it breaks my heart. I wish I could take this away. I love her. She makes me so happy and if I could give her my health I would. Today I’ve had to sit here and write this out because I’ve had disgusting humans calling my BEAUTIFUL little girl horrible names. I shouldn’t have to explain to people why my daughter hasn’t hit her milestones or why she acts and looks the way she does. If no one knows anything I have just explained about please use google and for the life of me STOP ASKING PERSONAL QUESTIONS. She has a cyst on her spine which has prevented all her ability to walk (which may never happen sadly). She’s 1 and still doesn’t sit up or roll over, the professionals are concerned but I still thank my lucky stars she’s breathing. She had a sleep study which came back her oxygen levels were fine but wasn’t ruling out hypoventilating when she’s asleep. She now jolts her feet and hands which is because that’s how her brains been wired. Her legs have to be put into braces to straighten them out as she flop to the side due to having no strength in her legs. My little girls a fighter!!! I’m proud of her regardless ❤️❤️
Mental health & me 